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The vision by: Bruce R. Kelly MD
Are you tired of contacting your PCP and they just don’t understand your issues? Statistically, you are probably their only spinal cord patient, and they have no experience with e.g., autonomic dysreflexia. There is a massive amount of information they must master to take care of their ambulatory patients, so these “special problems” take a back seat. That doesn’t make you less important, but there are only so many hours in a day, for medical support.
I assembled a Physician reference manual. My name is Bruce R. Kelly, M.D. and I retired after working 33 years as a hospitalist on a 40-bed spinal cord unit in a 200-bed rehabilitation hospital in Pittsburgh, Pa. It was originally Harmarville Rehab, then HealthSouth and now Encompass. I would spend my entire day on the unit handling all the various issues in addition to admitting and discharging patients. I conducted a patient/family meeting for everyone which would last 60-90-minutes. During that time, we discussed their injury, prognosis, bowel and bladder dysfunction, spasticity and other issues which might be particular to them. I had a special interest in spasm management, because I was one of the investigators for the FDA approval of the Medtronic baclofen pump and had over 100 pump outpatients that I followed.
I took on a project to help YOU help your PCPs. I wrote a version of the Medical Management of the Spinal Cord Patient, for you and your doctor. The Spinal Cord Injury Physician Manual. It is a short, concise booklet about the most common spinal cord problems, for which you might seek help. In addition, I translated the same information into a patient manual, to review or educate yourself, about your potential problems.
The two manuals are designed to be sold as a set to the patient, who can give or sell the physician manual to their PCP for their office. There are tons of good educational materials for patients, but the physicians are not provided an organized education source. This gives YOU the opportunity to provide educational material to your PCP so they can provide better care for you. They will likely be thrilled to have this information, because they want to provide you good care.
The Table of Contents for the Spinal Cord Injury Physician Manual and the Patient Manual is the same:
1. Autonomic dysreflexia
2. Neuropathic pain
3. Spasticity
4. Neurogenic bowel and bladder
5. Skin issues
6. Respiratory issues
7. The fever work-up
8. Heterotopic ossification or myositis ossificans
9. “I am getting weaker”
10. Ordering and reordering wheel chairs and cushions
11. Sexuality
12. Final comments
Dr. Kelly has two additional chapters which won't appear in the table of contents, added at no additional cost. They are - "Are You Forcing Your PCP to Overtreat UTIs" and "C Difff Diarrhea" Those who have already bought manuals will receive the two new chapters in the mail.
The Manual Set will help the patient convey better information and the physician understand problems with which they have no prior experience.
Urinary tract infection
Is UTI medical support the same with a spinal cord injury?
The Physician reference manual addresses this issue with this free chapter.
C.Diff diarrhea
Why does it needs special medical support?
How is it different from regular diarrhea?
The Spinal Cord Injury Physician Manual addresses this issue with this free chapter.
You can get medical support by purchasing the manuals. This will enable me to provide the Patient Manual and Physician Reference Manual pair for a low total cost of only $17.00 per set.
We are also selling the manuals separately. The Physician Manual is $10.00 and the Patient Manuals $7.00.
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